The Patient Hub
Ministry of Health of the Czech Republic ·Czechia
About this project
<table align="left"> <tbody> <tr> <td style="vertical-align: top"> <p style="text-align: justify"><span style="font-size: 11pt"><span style="font-family: "Calibri", "sans-serif""><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif"">At present, patient organizations in the Czech Republic do not have the right environment to fulfil their role as an independent and competent actor in the field of healthcare. </span></span><span style="font-family: "Arial", "sans-serif""><span style="font-size: 10pt">To this end, patient organizations need to be supported – through education, training and financial support </span></span><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif"">and feedback and stimuli from patients themselves – care users – need to be brought to the table.</span></span></span></span></p> <p style="text-align: justify"><span style="font-size: 11pt"><span style="font-family: "Calibri", "sans-serif""><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif"">Patient hub should have particularly those functions:</span></span></span></span></p> <ol> <li style="text-align: justify"><span style="font-size: 11pt"><span style="font-family: "Calibri", "sans-serif""><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif"">Space for education and training of patient organizations, individual patients and public in form of lectures, seminars, conferences.</span></span></span></span></li> <li style="text-align: justify"><span style="font-size: 11pt"><span style="font-family: "Calibri", "sans-serif""><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif"">A web portal with online educational content and video footage taken from events taking place at hub: accessible to everyone. The portal will include a</span></span><span style="font-family: "Arial", "sans-serif""><span style="font-size: 10pt"> Customer Relationship Management</span></span><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif""> (CRM) system for Patient hub team, which will make it possible to target information at individual patients and patient organizations more effectively.</span></span></span></span></li> <li style="text-align: justify"><span style="font-size: 11pt"><span style="font-family: "Calibri", "sans-serif""><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif"">Space for networking and sharing experience and best practice amongst each other and with other stakeholders in health care (non-governmental organizations, medical students, doctors, academics, app developers etc.). The purpose is to improve communication between patients and other stakeholders and their mutual connecting.</span></span></span></span></li> </ol> <p style="text-align: justify"><span style="font-size: 11pt"><span style="font-family: "Calibri", "sans-serif""><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif"">The overall aim of the project is to strengthen and professionalize patient organizations so that they can be an equal partner to other health actors, who is able to effectively comment on legislative and non-legislative proposals and provide feedback and suggestions from users of care themselves, as well as providing them with services (providing and sharing information, counselling, self-help activities etc.).</span></span></span></span></p> <p style="text-align: justify"><span style="font-size: 11pt"><span style="font-family: "Calibri", "sans-serif""><span style="font-size: 10pt"><span style="font-family: "Arial", "sans-serif"">The target groups of the project are patient organizations, that is, representatives and members of patient organizations, as well as individual patients and public.</span></span></span></span></p> </td> </tr> </tbody> </table> <p> </p>
Bilateral cooperation results
The Norwegian partner organization Norsk Revmatikerforbund (NRF) was involved in the project, which participated in the implementation of the project through consultations in the framework of the development of the portal and cooperation in the preparation of workshops and education for patient organizations. The main benefit for the project was the cooperation with the partner, especially the experience of the Norwegian organization NRF. The possibility of sharing know-how in the field of the functioning of professional patient organizations and communication with members of patient organizations and other actors was essential. Examples of good practice from Norway were presented to patient organizations in the Czech Republic.
Project partners
- The Norwegian Rheumatism Association Donor project partner· Norway