ECOU Community education for the organization and follow-up of patients with rare diseases

About this project

<pre>The ECOU project contributes to the achievement of the general objectives of the EEA Financial Mechanism by strengthening relations between Romania and the donor states, namely Norway, by continuing the exchange of best practices in the field of rare diseases and the development of medical institutions and services for patients with genetic and rare diseases from the two countries, thus contributing to the reduction of economic and social disparities in the European Economic Area. The ECOU project addresses a disadvantaged community, due to disabilities caused by rare diseases and isolation, regardless of ethnicity. We aim to increase prevention and reduce health inequalities for patients with rare diseases, using best practice examples from the Frambu Center in Norway. Prevention services are mentioned as a priority in the National Health Strategy 2014-2020, in the National Plan for Rare Diseases and it is a condition in the accreditation of Expertise Centers for rare diseases (WHO 540/2016).</pre>

Bilateral cooperation results

The project promoter's collaboration with the partner FRAMBU Resource Center in Norway was close throughout the project. 3 colleagues from Norway shared their experience during the final conference, and 5 members of the promoter participated in an experience exchange at FRAMBU.

Project partners

• Frambu Resource Center for Rare Disorders Donor project partner· Norway